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Brien Gearin

Nov 4, 20243 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Myra Holland

Oct 2, 20244 min read

Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.

mejo

Sep 10, 20242 min read

The collaborative effort aims to empower families to easily create visually stunning showcases highlighting their loved ones' lives...

Brady Crandall

Sep 5, 20243 min read

When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.

Courageous Parents Network

Sep 3, 20242 min read

This IN THE ROOM event featured 2 Rare Parents who Founded platforms.

Ryan Sheedy

Jul 10, 20243 min read

As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...

Industry podcasts worth checking out!

Brien Gearin

Nov 4, 20243 min read

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Real stories from real caregivers and experts.