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Brien Gearin

Nov 43 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Myra Holland

Oct 24 min read

Teamwork makes the dream work.

Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.

mejo

Sep 102 min read

mejo and Seattle Children’s Collaborate to Enhance Patient Care with Innovative Visual Narrative Feature

The collaborative effort aims to empower families to easily create visually stunning showcases highlighting their loved ones' lives...

Brady Crandall

Sep 53 min read

From Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth Crews

When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.

Courageous Parents Network

Sep 32 min read

In the Room: Let’s Make Caregiving a Bit Easier

This IN THE ROOM event featured 2 Rare Parents who Founded platforms.

Ryan Sheedy

Jul 103 min read

Our Unexpected Hospital Visit While On Vacation

As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...

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Brien Gearin

Nov 43 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Real stories from real caregivers and experts.