As my body attempted to right itself, I realized I had to fight for my own medical attention and my own life. I remember having to beg my parents to take me to the ER or to a doctor when I was horribly ill, on the floor, too sick and stiff to push myself up. It took 22 years until the UCLA Neuromuscular Clinic diagnosed a severe variation of stiff-person syndrome (SPS) with the progression of my disease. The neurologist believed I had a form of self-correcting cerebral palsy

IEP meetings can be overwhelming even for the most prepared caregivers. You’re expected to advocate clearly, recall detailed medical and developmental information, and coordinate across a team of professionals. mejo helps families show up ready by organizing care data, tracking educational and behavioral patterns, and creating clear summaries you can share with your child’s IEP team.

Participating in a clinical trial can be a powerful opportunity—but for families navigating rare, chronic, or medically complex conditions, it can also bring stress, confusion, and added burden. From remembering protocols and managing medications to documenting symptoms and coordinating care, trials add another layer to already complex lives.

Maddie Lou’s journey is one marked by unexpected challenges. At 16 months old, she was a healthy, neurotypical toddler. Just four months later, she received a life-altering diagnosis: Atypical Rett Syndrome.

Managing epilepsy takes more than just monitoring seizures, it takes coordination, consistency, and constant communication. Whether you’re an adult living with epilepsy, a parent of a child with seizures, or a caregiver supporting someone with a neurologic condition, mejo helps you stay organized, track symptoms, and share critical information with the people who need it most.