top of page
IgG4ward! Foundation Selects mejo to Develop IgG4-RD Care Coordination App
The IgG4ward! Foundation is delighted to partner with mejo to build IgG4ME!, a customized companion to help people with IgG4-RD rise to the
mejo
Dec 18, 20242 min read
Does Your Child Need Genetic Testing?
While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...
Rare Parenting
Jul 10, 20244 min read
Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know
A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...
Rare Parenting
Jun 25, 20243 min read
Is 'Patient-Centered' enough for medically complex patients & families participating in clinical trials or new treatments?
When we ask patients or caregivers to do more, do they see a substantial return on their time investment?
Bret Koncak
May 14, 20244 min read
What is a Child Life Specialist in the Hospital?
Parents of children with medical conditions or complex needs are usually familiar with an array of hospital staff, including doctors...
Rare Parenting
Mar 19, 20244 min read
Undiagnosed Children: What to Do Next
Parents of children with rare diseases may spend years tracking down effective treatments as they manage symptoms...
Rare Parenting
Jan 19, 20245 min read
_edited.png)
Our favorites
Industry podcasts worth checking out!
Hope With Lo: A Rare Journey of Courage, Care and Community
Lovingly known as “Lo,” Lola was diagnosed just before her first birthday. That moment changed everything for her family. Blind, deaf (she wears cochlear implants), and unable to walk or talk, Lola also faces serious complications with her liver, kidneys, bones....
mejo
Apr 144 min read
Featured blog
Blog
Real stories from real patients, caregivers and experts.
.png)
bottom of page