Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.

When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.

As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...

While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...

A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...

In the wild ride of parenthood, nothing quite prepares you for the unexpected twists and turns that life throws your way.

Today, we bring you the heartfelt testament of Amber, a devoted mother and caregiver, whose journey with her daughter Ryiah...

Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...

In the complexities of caregiving every day presents a unique set of challenges and triumphs.