From Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth Crews
When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.
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Ryan Sheedy
- Jul 11
- 3 min
Our Unexpected Hospital Visit While On Vacation
As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...
Rare Parenting
- Jul 10
- 4 min
Does Your Child Need Genetic Testing?
While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...
Rare Parenting
- Jun 25
- 3 min
Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know
A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...
mejo
- Jun 24
- 5 min
Navigating Rare Disease Challenges: How My Rett Ally Became a Mom's Secret Asset
In the wild ride of parenthood, nothing quite prepares you for the unexpected
twists and turns that life throws your way.
mejo
- Jun 17
- 4 min
Navigating the Complexities of Costello Syndrome
Today, we bring you the heartfelt testament of Amber, a devoted mother and caregiver, whose journey with her daughter Ryiah...
mejo
- Jun 11
- 4 min
The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
- May 27
- 3 min
Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo
In the complexities of caregiving every day presents a unique set of challenges and triumphs.
Podcasts
- May 23
- 1 min
Best in Class Caregiving with mejo App Founder Ryan Sheedy
Confessions of a Rare Disease Mom - the Podcast.
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Brady Crandall
- Sep 5
- 3 min
From Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth Crews
When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.
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