IgG4ME! — A New Care Coordination App Built for the IgG4‑Related Disease Community

Living with IgG4‑Related Disease (IgG4‑RD) can feel overwhelming—especially when trying to manage symptoms, communicate with multiple specialists, and keep track of tests, medications, and flare patterns. The complexity is real. The support tools have been limited—until now.

That’s why the IgG4ward! Foundation partnered with mejo, a digital health company focused on rare and complex conditions, to launch IgG4ME!—a free care coordination and symptom-tracking app built specifically for the IgG4‑RD community in the U.S.

Why IgG4ME! Is a Game-Changer for People Living With IgG4-RD

Unlike traditional electronic health records (EHRs) or patient portals, IgG4ME! is patient-directed, meaning you are in control of what’s tracked, stored, and shared. That matters in a condition like IgG4-RD, where diagnosis and care can involve:

• Multiple organ systems (pancreas, salivary glands, lymph nodes, etc.)

• Complex treatment regimens including immunosuppressants or corticosteroids

• Delays in diagnosis or misdiagnosis due to lack of awareness

• Long-term symptom tracking and monitoring for disease progression

• 
  

IgG4ME! is designed to help patients, caregivers, and clinical teams stay ahead not just react by capturing the real-life context between appointments.

What You Can Do With the IgG4ME! App

Feature	How It Helps
Create a complete care profile	Keep diagnoses, provider info, meds, allergies, and protocols in one secure place
Track daily symptoms & flares	Identify patterns, monitor disease activity, and stay proactive
Manage treatments & meds	Log start dates, dosages, and side effects for each therapy
Upload documents & reports	Labs, imaging, clinic notes, and more—all in one place
Share updates with care teams	Empower your doctors, specialists, and loved ones with accurate, up-to-date info

This is not just a log. It’s your living health story.

Built for the IgG4-RD Community. Backed by Rare Disease Experts.

The app was co-developed by mejo, the company behind other rare disease platforms like My Rett Ally, and the IgG4ward! Foundation, led by Dr. John Stone, Harvard professor and leading global expert in IgG4-RD.

“Staying one step ahead of this disease is critical—and that starts with being organized and informed.” – Dr. John Stone

IgG4ME! is now available for free to all individuals and caregivers affected by IgG4‑Related Disease in the United States.

Learn more or sign up here: https://igg4ward.org/igg4-me-app/#IgG4ME

For Advocacy Groups, Researchers & Sponsors: Why This Matters

IgG4ME! is more than an app—it’s a platform.

Built on the flexible, secure mejo infrastructure, IgG4ME! can:

• Drive patient engagement

• Capture real-world evidence (RWE) between visits

• Support early intervention and improved outcomes

• Boost adherence and care team alignment

  
  

If you're a pharma partner, sponsor, or advocacy organization working in rare disease or chronic illness, mejo can help you launch your own customized platform just like we did for IgG4ME! to meet patients where they are and support them beyond the clinic.

A New Era for IgG4-RD Care

Whether you’re newly diagnosed, managing long-term symptoms, or supporting a loved one, IgG4ME! gives you the structure, clarity, and confidence to move forward and helps providers better understand what life with IgG4-RD really looks like.

This is care coordination designed for the real world. And it’s just the beginning.

Learn more about IgG4ME! here: https://igg4ward.org/igg4-me-app/#IgG4ME

Disclaimer: This content is for informational purposes only and does not constitute medical advice. Always consult your healthcare provider for guidance related to your health or condition.