Why EHRs Aren’t Enough: How mejo Gives Families the Full Picture of Health + Care

Electronic Health Records (EHRs) play a critical role in modern healthcare. But for individuals and families navigating rare, chronic, or medically complex conditions, EHRs only tell part of the story and often, not the part that matters most.

Most of the time, it’s not the doctor telling the story. It’s the patient or the caregiver. And yet… the patient has no control over the record.

What EHRs Do—and Don’t Do

EHRs were built for providers. They’re optimized for billing, compliance, and clinical documentation. That’s important but it’s also limiting.

Here’s what EHRs don’t let you do:

❌ Track symptoms or behavior in real time

❌ Edit or update a care plan after an appointment

❌ Add daily routines, feeding notes, or observations

❌ Store your own documents, protocols, or files

❌ Share you or your loved one's story with others in a way that makes sense

The patient, the person living the journey every single day has no meaningful ability to contribute to their own record. And yet they’re the one most equipped to provide insight, context, and clarity. This disconnect is where families fall through the cracks and where mejo steps in.

mejo Gives Families the Control EHRs Don’t

mejo is a patient-directed digital health platform that empowers individuals and families to track, store, organize, and share the full picture of care. Instead of siloed data locked away in portals, mejo puts people in the driver’s seat with tools that make it easy to:

✅ Log symptoms, changes, and daily observations

✅ Store and manage your own care documents and protocols

✅ Update meds, appointments, and routines on the fly

✅ Share secure profiles with teachers, nurses, providers, or family

✅ Capture what EHRs miss—real life, real time

Whether you're managing seizures, feeding tubes, behavioral changes, or simply the complexity of daily life, mejo gives you a way to capture it on your terms.

Why Patient-Directed Is Critical

Let’s be honest: your neurologist sees your child for 20 min. You see them 24/7.

You’re the one observing changes in mood, behavior, and sleep. You’re the one tracking medication side effects, advocating in IEP meetings, managing appointments, and calming panic attacks.

Real-Life Examples: Where EMRs Stop, mejo Starts

Starting a New Medication

Can’t track what’s happening day-to-day in your EHR? With mejo, you can log side effects, note patterns, and share an accurate, visual timeline with your provider.

Care Coordination Across Specialists

Juggling multiple doctors and systems? mejo brings all your information like diagnoses, meds, protocols, contacts, documents into one secure, easy-to-manage space.

Sharing with School and Family

EHRs can’t communicate with your child’s school. mejo can. Send a personalized, secure profile to teachers, aides, and nurses so they have what they need, when they need it.

Why mejo Matters—for Patients, Families, and Care Teams

When patients and families are supported, care improves.

mejo gives families:

• Structure in chaos

• Clarity before appointments

• Confidence to advocate

• Relief from rewriting the same info again and again

  
  

It’s more than a health record. It’s a living, breathing narrative, one that you actually control.

Final Word: EHRs Are the Record. mejo Is the Story.

Electronic Health Records will always be a part of care but they aren’t the whole picture. They’re limited. Fragmented. Passive. And they don’t empower the people doing the real work of care every day.

mejo bridges that gap between clinics and real life giving patients and caregivers a place to tell the full story, organize life, and partner better with their care team.

Start Your Story with mejo

Whether you’re managing complex care, starting a new treatment, or advocating at school mejo helps you capture what matters and share it with confidence.