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The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
Jun 11, 20244 min read
Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo
In the complexities of caregiving every day presents a unique set of challenges and triumphs.
mejo
May 27, 20243 min read
Best in Class Caregiving with mejo App Founder Ryan Sheedy
Confessions of a Rare Disease Mom - the Podcast.
Podcasts
May 23, 20241 min read
My Rett Ally: Revolutionizing Care Management for Rett Families
On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...
International Rett Syndrome Foundation
May 16, 20244 min read
ONCE UPON A GENE - EPISODE 197 - Rare Disease Dad Chronicles - Ryan Sheedy
Ryan Sheedy is a dadvocate and the Co-Founder of My Mejo. He shares his journey of courage and determination to provide a service...
Effie Parks
May 16, 20242 min read
A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea
In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...
mejo
May 16, 20242 min read
What is a Child Life Specialist in the Hospital?
Parents of children with medical conditions or complex needs are usually familiar with an array of hospital staff, including doctors...
Rare Parenting
Mar 19, 20244 min read
Child Life on Call - Episode 189 | Ryan’s Story- A son with Costello Syndrome
Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin...
Podcasts
Mar 1, 20242 min read
Undiagnosed Children: What to Do Next
Parents of children with rare diseases may spend years tracking down effective treatments as they manage symptoms...
Rare Parenting
Jan 19, 20245 min read
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Our favorites
Industry podcasts worth checking out!
Meet Tanmayee: A Story of Resilience, Reinvention, and the Power of Connection
“I remember feeling completely overwhelmed,” Madhura says. “Suddenly, we were trying everything—steroids, a ketogenic diet, multiple medications, and eventually, a VNS implant. She was the youngest patient at the hospital to get that device—just 27 months old.”
mejo
May 74 min read
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