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Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo

In the complexities of caregiving every day presents a unique set of challenges and triumphs. For Laura, a devoted mother to her son Sam, navigating life with rare complex genetic condition has been a journey marked by resilience, love, and a steadfast commitment to providing her son with both necessary care and the freedom to simply be a kid.

Sam’s rare genetic condition requires constant attention and specialized care. Laura's days are filled with meticulous routines, medical appointments, and the ever-present concern for Sam's well-being. Yet amidst the challenges, Laura is intentional about fully ensuring that Sam experiences the joys of childhood possible.

Sam, a spirited young boy with an infectious zest for life, navigates the world with a resilience that belies his tender age. Despite the physical challenges posed by his condition, he exudes an unyielding courage and an insatiable curiosity for the wonders that surround him. His laughter, like a beacon of light in the darkness, illuminates the hearts of all who know him.

At the heart of Laura and Sam’s journey lies the decision to embrace new opportunities, even amidst the backdrop of uncertainty and fear.

Last summer, Laura made the decision to allow Sam to attend summer camp without a nurse for the first time, a milestone both exhilarating and nerve-wracking for any parent, but particularly so for a caregiver of a medically complex child like Sam. Giving Sam the opportunity to participate the joy of camp activities while being away from the safety net of home was both thrilling and anxiety-inducing.

However, Laura's fears were assuaged by the presence of mejo, a digital health platform that has become an indispensable tool in her caregiving tool kit. With mejo, Laura was able to compile all of Sam's medical and care information in one easily accessible app, providing a comprehensive overview of his needs, medications, and emergency contacts.

On the first day of camp, Laura ensured that Sam's camp bag contained a printout

of his mejo journal, offering invaluable insights to camp counselors and staff. However, amidst the flurry of preparations, Laura inadvertently left the bag at home the following day, a moment of panic threatening to overshadow her peace of mind.

Yet, mejo came to the rescue once again with its secure sharing function. With a few taps on her phone, Laura was able to securely share Sam's information with his camp counselor, ensuring continuity of care without missing a beat. The expiration feature provided an added layer of security, allowing Laura to maintain control over the dissemination of sensitive information.

For Laura, mejo represents more than just a digital platform—it's a lifeline, a source of comfort in the face of uncertainty, and a testament to the power of innovation in improving the lives of caregivers and their loved ones.

As she reflects on her experience, Laura shares, "When you're the parent of a medically complex child, you're constantly thinking through all the 'what ifs' and making every effort to prevent the worst-case scenario. mejo makes that easier by knowing that if/when the next shoe drops, every piece of information we need is in one place and ready to go."

What sets mejo apart, according to Laura, is its unparalleled combination of comprehensiveness and user-friendliness. In an age where digital solutions often sacrifice one for the other, mejo stands out as a beacon of efficiency and ease-of-use—a true breath of fresh air for caregivers like Laura.

As Sam gets to be a kid and enjoy the adventures of summer camp, Laura finds herself embracing a few precious days of respite, knowing that mejo is there to bridge the gap between home and away. In the everyday tasks of caregiving, moments of peace and reassurance are rare and precious. Thanks to mejo, Laura and Sam can continue their journey with renewed strength and confidence, knowing that they're never alone in facing the challenges ahead.

Laura’s Top 3 mejo “moments of care”:

  1. Sending mejo prior to quarterly Medicaid calls. It saves her 30 min per call because the information is all there.

  2. Handing mejo off during pre-op instead of having to write or repeat all of Sam’s meds or history.

  3. Sharing mejo with COE’s prior to a clinic visit so all the providers have the most up-to-date info before Sam is even seen.

mejo is an AI enabled caregiver’s assistant that provides support for caregivers, rapid insights for sponsors and deeper engagement for communities.

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