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The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
Jun 11, 20244 min read
Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo
In the complexities of caregiving every day presents a unique set of challenges and triumphs.
mejo
May 27, 20243 min read
My Rett Ally: Revolutionizing Care Management for Rett Families
On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...
International Rett Syndrome Foundation
May 16, 20244 min read
A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea
In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...
mejo
May 16, 20242 min read
Is 'Patient-Centered' enough for medically complex patients & families participating in clinical trials or new treatments?
When we ask patients or caregivers to do more, do they see a substantial return on their time investment?
Bret Koncak
May 14, 20244 min read
International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome
My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...
International Rett Syndrome Foundation
Jul 18, 20233 min read
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IgG4ME! — A New Care Coordination App Built for the IgG4‑Related Disease Community
Living with IgG4‑Related Disease (IgG4‑RD) can feel overwhelming—especially when trying to manage symptoms, communicate with multiple specialists, and keep track of tests, medications, and flare patterns. The complexity is real. The support tools have been limited—until now.
That’s why the IgG4ward! Foundation partnered with mejo, a digital health company focused on rare and complex conditions, to launch IgG4ME!—a free care coordination and symptom-tracking app built speci
mejo
6 days ago2 min read
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