Patient Empowerment

mejo

Jun 114 min read

The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome

Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...

mejo

May 273 min read

Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo

In the complexities of caregiving every day presents a unique set of challenges and triumphs.

International Rett Syndrome Foundation

May 164 min read

My Rett Ally: Revolutionizing Care Management for Rett Families

On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...

mejo

May 152 min read

A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea

In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...

Bret Koncak

May 144 min read

Is 'Patient-Centered' enough for medically complex patients & families participating in clinical trials or new treatments?

When we ask patients or caregivers to do more, do they see a substantial return on their time investment?

International Rett Syndrome Foundation

Jul 17, 20233 min read

International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...

Our favorites

Industry podcasts worth checking out!

Brien Gearin

Nov 43 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Real stories from real caregivers and experts.