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Best in Class Caregiving with mejo App Founder Ryan Sheedy
Confessions of a Rare Disease Mom - the Podcast.

Podcasts
May 23, 20241 min read


My Rett Ally: Revolutionizing Care Management for Rett Families
On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...

International Rett Syndrome Foundation
May 16, 20244 min read


ONCE UPON A GENE - EPISODE 197 - Rare Disease Dad Chronicles - Ryan Sheedy
Ryan Sheedy is a dadvocate and the Co-Founder of My Mejo. He shares his journey of courage and determination to provide a service...

Effie Parks
May 16, 20242 min read


A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea
In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...

mejo
May 15, 20242 min read


Is 'Patient-Centered' enough for medically complex patients & families participating in clinical trials or new treatments?
When we ask patients or caregivers to do more, do they see a substantial return on their time investment?

Bret Koncak
May 14, 20244 min read


What Parents Need to Know About SUDEP – Sudden Unexpected Death in Epilepsy
Epilepsy affects up to 470,000 American children and about 11 million children ages 15 and under worldwide.

Rare Parenting
Apr 27, 20243 min read
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mejo is for you, you and you.
Think mejo isn’t for you? Think again. Families, caregivers, and patients of all kinds are using mejo to simplify life and care — from IEP plans and medication lists to therapy goals and caregiver communication. Because everyone deserves a little less chaos and a little more calm.

Ryan Sheedy
Oct 27, 20253 min read


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