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Navigating Rare Disease Challenges: How My Rett Ally Became a Mom's Secret Asset
In the wild ride of parenthood, nothing quite prepares you for the unexpected
twists and turns that life throws your way.
mejo
Jun 24, 20245 min read
The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
Jun 11, 20244 min read
My Rett Ally: Revolutionizing Care Management for Rett Families
On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...
International Rett Syndrome Foundation
May 16, 20244 min read
International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome
My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...
International Rett Syndrome Foundation
Jul 18, 20233 min read
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Our favorites
Industry podcasts worth checking out!
Turning advocacy into power for patients and families.
Advocacy is a word we hear often in healthcare. But for many families, advocacy isn’t a choice, it’s survival. For me, it started the day my son Reynolds was born.
From the delivery room to the NICU to countless appointments and hospital stays, advocacy has been woven into every step of our journey.
Ryan Sheedy
Aug 193 min read
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Real stories from real patients, caregivers and experts.
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