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mejo
Jun 23, 20245 min read
Navigating Rare Disease Challenges: How My Rett Ally Became a Mom's Secret Asset
In the wild ride of parenthood, nothing quite prepares you for the unexpected
twists and turns that life throws your way.

mejo
Jun 11, 20244 min read
The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...

International Rett Syndrome Foundation
May 16, 20244 min read
My Rett Ally: Revolutionizing Care Management for Rett Families
On a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...

International Rett Syndrome Foundation
Jul 17, 20233 min read
International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome
My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...
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mejo
7 days ago4 min read
Finding His Voice: Jonathan’s Journey with an Ultra-Rare Disease and How He Advocates for All
When you’re living with a condition that fewer than 20 people in the world share, it can feel isolating—like carrying a secret...


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